We want to help families to share information about the genetic diagnosis in their family. This is because family members may have the same risk as their relative.
As part of research, we are asking for the help of families who has been told they have a higher risk of bowel cancer. In these families many family members may not know about their risk. In fact, some research has shown that less than half of relatives who are at risk of bowel cancer get screening that might help them.
We think it is important that families share this knowledge because when people know about their increased risk of bowel cancer there are things they can do about it. People can reduce the chances of getting cancer in many ways, like getting screening, taking aspirin regularly or eating a healthy diet.
This research has been approved by the NHS Health Research Authority and Research Ethics Committee (ref: 15/SW/0250) for recruitment through six NHS Trusts. We are very grateful for the contribution already made by all the participants to our survey and interviews which have helped us create this website.
We want to hear from people who use this website to understand how to make it even better. If you have any comments or suggestions please use the contact page or email me on firstname.lastname@example.org.
Selina Goodman, Registered Genetic Counsellor
& PhD Student at Plymouth University